We received a call tonight from our Hemoc Dr. informing us that Jalen is a 100% donor match for Mireya. Words cannot express our joy! God is so good and so faithful! It is hard to translate my excitement and elation across this page, but imagine my heart so full it...

It's been years since I've been to Busch Gardens. I have friends that love BG and go there every year. We usually purchase Kings Dominion Season Passes. I really don't ride roller coasters or many other rides for that matter. I have this 'motion' thing. Riding in the...

Mireya remained fever free overnight. Her white and hemoglobin counts also increased. The platelet count remains high following the transfusion yesterday which is really good. We had a bit of an issue when the nurse came to draw her culture. She went in for the stick...

Mireya managed to rest well overnight and has been without fever since late last night. A victory in the midst of it all. She has a fair amount of petechiae in her mouth and also some new areas on her neck. Her counts are all extremely low today. Her white count is...

Day Four at the hospital and this fever just won't let up. Reya cannot be released until she is fever free for at least 24 hours. Her fever continues to fluctuate between 99.0-103.6. The fever is at its lowest following a dose of Tylenol. She did have two cycles of...

The 'osis' is Aplastic Anemia. We were holding out that it could be something else, but all of the testing has eliminated assumptions of whether or not it's non-classic ITP or another type of blood disorder. We remain prayerful that her body has the potential to turn...

I was having a bit of banter with my sister yesterday and telling her that I needed a Road Trip. Well I imagined quite a different journey, but I hopped on the highway this morning, hit a few tolls and pulled up to the Pediatric E/R. Mireya had a high fever and was...

Reya's platelet count was less than 6k, so she needed another transfusion today. Unless something changes we could be rolling thru this rotation every 5-7 days....NOT! I don't want to play this anymore. The white cell count is up a few notches, but the lingering issue...

and when your down your down. Mireya's hemoglobin and her white blood cell count are up this week, but those pesky platelets still continue to be an issue. Within the last 7 days they have gone from less than 5k to 79k and now they are 12k. I could tell based on some...

We had a routine follow-up at Hemoc today. Well it was pretty routine until a fire alarm went off on one of the floors which necessitated the entire Nelson Clinic to be evacuated for a short period of time. My initial dilemma was how I was going to get that heavy...