July 6th
New Birthday Celebration - 1 year ago Today marks the One Year Anniversary of Mireya's bone marrow transplant. Her 'new' birthday medically speaking. Celebrating this day is bittersweet as we are preparing to repeat the transplant process in a few weeks. Despite it...
Second Time Around
This weeks appointment was a tough one. We've been holding out for Mireya's body to make a turn around, but an additional chimerism test and the downward trending of her counts show her graft is failing. We were hoping to avoid a second transplant, but the next step...
Teamwork Makes the Dream Work
Mireya was discharged from the hospital over the weekend. There was so much going on 'in the midst' of this hospitalization. We received a call from the Head of Peds Hemoc to discuss Mireya's positive blood cultures and the medical implications. What she did not...
Midnight Fiasco
Mireya is doing well. The results of her blood culture will take at least 48 hours. She continues to get rounds of fluids and antibiotics. In the past, Mireya has had a reaction to one of the antibiotics and requires pre-treatment with Benydryl. Benydryl tends to...
We’re Back
Our appointment this week was disappointing. Reya is on the line for receiving platelets and a blood transfusion. The decision was made to hold off on any transfusions, largely based on the possibility of needing to repeat the transplant via the boost. The...
Father’s Day Scuba Fun
It's been a minute since Quentin and I have had the pleasure of both getting out to do something together. I read a post about a Discover Scuba session and decided it would be a really fun activity to do on Father's Day. Our interest in scuba diving was initially...
The Heart of The Children
So much has transpired in the last few months. The love and support of many is still so amazing. Over this 11 month period, Mireya has been an exemplary patient and a true fighter. She presses through with a resilience and a flow that is beyond words. We try not...
Holding Pattern
Mireya's visit this week showed a small improvement in one area and a steep decline in another. It's hard to gauge progress while fighting this infection. We're in a holding pattern for another week to see how Reya's body recovers. Our spirits are lifted as we...
Despite it All
Sometimes it doesn't matter what life throws your way. Remember who you serve, who stands beside you and keep smiling. So thankful for my husband. Through the ups and downs, we have one another and God's got us, so we continue to smile and give him praise despite...
Off to the Ball
We had the joy of attending the 2nd Annual Masquerade Ball for the children and families of ASK. I had not planned to attend the ball (my glass slippers had put in enough miles throughout the week), but Princess Mireya was adamant she 'needed' to make it to the ball....