Super Bowl Fun & Feature
We had a great time Sunday with family, enjoying a delicious assortment of foods and watching the Super Bowl. I don't necessarily have 'a team', there are a number of talented athletes I enjoy watching, but overall I like good football. My B'more family was doing it...
Freedom
These last few weeks have been so 'freeing' for Mireya Being able to ditch the mask was major, getting her line removed was icing on the cake. She is living life in an entirely new way. Enjoying every moment with freedom and without limitations. She is transforming...
Hoo’s for Mireya’s Miracle
A few weeks ago a beautiful young lady came into our lives, she was crowned Ms. Chesterfield 2013 and Miryea will serve as one of her Princesses this year. Her name is Kiara Williams and she is a 2nd year law student at UVA. Kiara sent me the sweetest message a few...
Done & Gone
It's Time The removal of Mireya's line was successful and without issue. We arrived bright and early and waited through the course of the scheduled procedures until we were pulled from the queue for our turn. Reya has been excited for the last day at the prospect of...
Amazing Grace
We received a call this afternoon from our Nurse in clinic to schedule the removal of Mireya's line. It will be taken out on Friday. Tears filled my eyes and I wanted to jump through the phone and hug her tight. THANK YOU LORD!!! There are no words to express our...
We’re so Excited
And just can't hide it......you know the rest (Bless the Pointer Sisters). Mireya has been doing fabulously. Her counts have remained stable and were the best they have been collectively in the last 22 months. God is so faithful! She no longer has to wear a mask!...
Our Crowned Princess
Mireya really enjoyed her reign as a 2012 Miss Chesterfield Princess. Participating in the pageant this year sort of got lost with so much else going on, and it seems like Pageant day arrived very soon after I got the memo (or at least that's the way it felt). I was...
Happy New Year
It's the new year.....out with the old and in with the new (or improved). The beginning of a new year is also a time of reflection and one to set or realign goals. There are so many things I'm looking forward to this year.This year I expect and am looking forward...
Fun Times with Connor’s Heroes
We had a great time with Connor's Heroes at the Winter Wonderland and Holiday Ball event. Connor's Heroes is one of our favorite organizations that is doing fabulous things in the community and for families of children with cancer and other life threatening...
Fright Night
As if there is not enough excitement in our lives, we had a very frightful experience last night as we watched Paris go through an allergic reaction to a something she ate. Paris has no known allergies to foods or medicines, but immediately after she consumed a few...