Post 100 Days

Our appointment this week was very good.  We were really getting antsy about what Mireya's body has been doing since our last appointment.  We were happy to find her counts are holding relatively well.  We're continuing to wean her immunosuppression meds with little...

Prayers for Newtown

I've sat here most of the day with a pit in my stomach as the ruthlessness of these events has unfolded.  So much is going on in our world that is out of control.  My heart is broken and aching for the families of the children and adults killed senselessly today. ...

Another 100 Days

Praise the Lord....we've reached another major milestone, our second 100 days!!  We've been on edge for the last week or so because Mireya's had the sniffles and a scant cough, but we were happy to see good counts at our last appointment.  Day 100 is significant in...

Sick and Shut-Out

Madness has attempted to infiltrate the camp.  At this point, we don't have time for illness or o-sis (as in diagnosis) in the #TeamBolton household.  Any type of illness would be very damaging to the progress Mireya's body is making. These last few weeks have been...

Not Forgotten

It's so easy to slip off the scene when so much is going on in life...your life and the lives of everyone around you.  Sometimes you feel like your hovering just above the breaking point.  That thread is unraveling, the nerve is giving in, that last brown blade of...

Higher Higher

Over the last few weeks, Reya has been putting out the best counts we've seen in over a year!  We're still remaining very watchful over delicate skin issues, but overall Mireya is tracking well. She had her first pentamadine treatment since the summer today.  She was...