We’re on the Move
Mireya had a great week! She's feeling good, looking good and her counts are great. We had our first series of PAL testing in school and she did amazingly. We're really pleased to have a full week of great labs. Next week we'll determine where we are with...
Round & Round
The world of counts, labs, cells and test is ever evolving. Mireya's counts have been good, her chimerism ratios are getting tricky, but we're still believing and trusting God. It was noted in our last appointment that Mireya's skin 'appeared' to be dry and her lips...
Shifting the Atmosphere
Doing Homework in Clinic Mireya has had a couple of really good appointments. Her counts are fluctuating between good and very impressive. She's been placed on a schedule to wean her off the immunosuppresion meds. This has us a little concerned because it seems so...
Full Days
Today was a big day. Mireya had clinic, which was full of shifts and turns, but today was also her first day of school with her teacher. Clinic we won't spend to much time on, we'll just give it to the Lord and continue to trust him to work it out. A second...
Color Run Fun
My big girl had some fun in RVA this weekend at the Color Run, dubbed the Happiest 5K on the Planet. After visiting the website and seeing all the awesome pictures taken, I definitely want to participate in this event when it comes back to town or close by....
Holding Steady
I Heart Bacon We had favorable appointment to round out the week. Reya's counts are holding steady. We didn't have to receive GCSF and one of her immunosuppressant medications was dialed back. Hopefully it will allow us to see what her body can do with less...
Musculoskeletal Madness
Jalen came off the bus looking like he had dislocated his shoulder. He said he was not in pain, but said that something happened when he reached down for his scissors while sitting at his desk at school. These are the type of issues that always happen after 4pm on a...
Life & Monkeys
Our last appointment was a positive one. The GCSF has helped to increase Mireya's counts. Her magnesium still lingers, so we'll up the frequency of the IV Mag at home. Mireya has also developed a slight on again off again cough. We will need to restart the pentam...
Adjustments
Mireya's tacrilimus level is still elevated. Testing this level allows us to determine how the medication is being absorbed in her body and if it remains below the toxic level. There are several signs of Tacrolimus toxicity, the most urgent is kidney damage. It is...
Consumed
It's been a weekend filled with sadness. Cancer has taken the lives of two very special people. There are no words for the heartache and grief we feel. We're grateful to have known a vibrant, warm and loving woman & mother who fought cancer with her daughter (twice)...