@Last
Ready to Go Home Riding & Designing Home Sweet Home Hmm it was a toss up between Freedom (George Michael), or a line from Peebles, 'I'm out the door babe, there's other fish for us to see' (#TeamBolton revamp). Blame it on a dozen SongPop challenges while at the...
Scholastic Endeavors
Yesterday was Orientation for Jalen and Mireya. We've been on the fence about how to approach and proceed with plans for Mireya and school. She is definitely ready, but we want to do what is best for her considering treatment, isolation and the possibility of her not...
Throw Your Hands Up
I Will Watch Over and Protect Her From the Beginning We've Been Side by Side We're raising the roof AND praising God! Reya's counts were through the raised roof today. The white count doubled. Her platelets and hemoglobin also increased. Controlled freedom is in...
Ups, Downs & Changes
Look Mom...No Lines Three Amigos Mireya's counts have been through a series of highs and lows over the last few days. We saw high numbers over the weekend that were seemly to good to be true so early, but the team is not concerned. Mireya is right where they expect...
Still Tracking
Mireya's counts took a small dip, but are still in the process of stabilizing. Over the last several months, Reya's white count has fluctuated anywhere between 1.5-4.6. Having her on the board at 1.5 at this point is promising. Her neutrophil count remains above...
Best News Ever
I woke up to a very grumpy girl (a grumpapottamus), who has boycotted everything this morning except, bacon and cinnamon toast crunch. We're having our moment of silence right now. We'll resume our previously scheduled program of love and harmony shortly. In the...
Fun Filled Days
Mireya's had a full day of activities and fun. The Art Teacher, Ms. Gretchen came by, she and Reya painted several pictures and made all sorts of things with playdough. Ms. Fran, from Connors Heroes stopped by to check on Jalen's status and visit with Reya. She also...
The Grind
Mireya's days are filled with numerous checks and balances. Every morning we are greeted by our Care Partner to check Reya's weight, temperature and blood pressure as well as saturation of her hemoglobin with the pulse ox. Next up is the first round of her daily...
Praying and Waiting
Jalen and Mireya are doing well respectively. The bandages on Jalen's legs have been removed. He is very sore, but is making the necessary adjustments and getting around well. Mireya is at Day +4 since the transplant. The Medical Team is pleased overall with where...
If At First You Don’t Succeed
One of Our Favorite People Stopped By try, try again. Day 2 of Apheresis started off with a bit of uncertainty. There was concern because Jalen's white cell count dropped significantly from the day before. Although the white count was low, another cell marker...