Not Forgotten

Not Forgotten

It’s so easy to slip off the scene when so much is going on in life…your life and the lives of everyone around you.  Sometimes you feel like your hovering just above the breaking point.  That thread is unraveling, the nerve is giving in, that last brown...
Higher Higher

Higher Higher

Over the last few weeks, Reya has been putting out the best counts we’ve seen in over a year!  We’re still remaining very watchful over delicate skin issues, but overall Mireya is tracking well. She had her first pentamadine treatment since the summer...
We’re on the Move

We’re on the Move

Mireya had a great week!  She’s feeling good, looking good and her counts are great.  We had our first series of PAL testing in school and she did amazingly.  We’re really pleased to have a full week of great labs.  Next week we’ll determine where we...
Round & Round

Round & Round

The world of counts, labs, cells and test is ever evolving. Mireya’s counts have been good, her chimerism ratios are getting tricky, but we’re still believing and trusting God.  It was noted in our last appointment that Mireya’s skin...
Shifting the Atmosphere

Shifting the Atmosphere

Doing Homework in Clinic Mireya has had a couple of really good appointments.  Her counts are fluctuating between good and very impressive.  She’s been placed on a schedule to wean her off the immunosuppresion meds.  This has us a little concerned because it...
Full Days

Full Days

Today was a big day.  Mireya had clinic, which was full of shifts and turns, but today was also her first day of school with her teacher.  Clinic we won’t spend to much time on, we’ll just give it to the Lord and continue to trust him to work it out.  A...